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Falling Fiasco

Some time this past June...not sure exactly when (and too lazy to try and figure out exact dates) I fell...HARD...on our tiled bathroom floor. Surprisingly, it was NOT caused by errant MS symptoms, but rather a wet patch on the floor that I managed to find as I was leaning into the shower putting back the shampoo!  After about 4 hours, I reluctantly went to emergency to get things checked out (I couldn't put any weight on my right leg without it hyper reflexing with pain). The end result was...no broken hip but a pretty sore body!

Thankfully, I had my rollator, which I normally don't use in the house (it stays in my car) and came in handy because I couldn't bear any weight on my right leg, so it helped me to keep my balance, which I promptly lost the following day while trying to get something out of the fridge! Needless to say, I went for a header onto the kitchen/dining room floor, which thankfully, is wood (so much softer than tile) but banged up my left arm. I had a m…

The Shoes on the Other Foot

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I love shoes!...what woman doesn't? Shoe stores are like candy stores for women...so many shoes, so many colours, so many varieties...ahhh! Heels, flats, sandals, sneakers, boots and everything else in between.

So what has this got to do with MS???

I am lamenting the fact that my MS symptoms now dictate the shoe fashions I can wear...and I'm not particularly impressed!

It started with high heels...they were the first to go...too tricky to try and balance on a teeny tiny heel when your balance is slightly off.  Not a big deal...I'm 5'9" and my partner is 5'10", so I didn't wear a lot of stilettos, anyway.  I was still able to wear short kitten heels, so that was OK.

A few years later and the kitten heels were out. Balance issues now dictate flat footwear only and nothing with a platform...that's just a twisted ankle waiting to happen!

Now, thankfully, I work in a profession where I don't have to wear office attire...I'm a teacher...and I t…

This Weeble Wobbles

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I feel a lot like a Weeble these days.

Anyone over 40 will know what I'm referring to...those egg-shaped toys from Hasbro that wobbled but didn't fall over.

I've been doing a lot of wobbling lately. Wobbling along with wall-walking...I'm beginning to not like 'W's".

Thankfully, like the Weebles, I'm managing to NOT fall over.  But I've had a few close call "timmbberr!" moments; and only through the sheer luck of having a wall, or a chair, or some hard surface, ...or my husband (thanks, hon!) close at hand to grab on to as I feel myself lose balance, has prevented me from actually going for a 'header'.

I've also swallowed my pride and now use my rollator whenever I go out and have to walk more than a few steps in the open. Actually, I've been doing this for about a year now.  Better a bruised ego than a bruised hip!

It's frustrating because I'm not sure WHY I'm so wobbly?? Well...I know WHY I'm wobbly, I gu…

The iConquerMS Organization

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Welcome to iConquerMSâ„¢! | iConquerMS.org



If you have MS or know someone who does, I strongly urge you to get them to join this organization! I feel very strongly that patients are the best advocates for their health and this is an easy way to get involved in meaningful research.

Retroviruses and MS

I came across this research paper which looks at the association of a specific retrovirus to a single nucleotide polymorphism (SNP) which seems to be prevalent in patients with onset symptoms of MS.    Another article looked at the Epstein Barr Virus (EBV) which has long been linked with MS and researchers are now actively looking at treatments that boost immunity to EBV see article here.

I found this quite interesting, as the protocol I am following specifically addresses viruses as one of the factors in chronic disease.  That SNiPs are potentially involved in susceptibility to these retroviruses is even more interesting.  When I read that, I immediately looked through the raw data of my 23andme genetic test...but disappointingly, the SNiP associated with the HERVfc1 virus was not part of the genes tested. :(  

Up until now, I hadn't really given much thought to retroviruses.  I knew about the possible link between EBV and MS but since I had never had mono, didn't think it …

Biochemical Testing

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One of the first things I did when I decided to try the Yasko protocol was to undertake a slew of tests to get a baseline as to where I was as far as vitamins, minerals, amino acids, gut flora, toxins, etc.  I was feeling a bit guilty about spending so much money on testing ($2000...gulp!), so I cashed in my savings bonds that I had intended to keep for vacation purposes.  Apparently my guilt was definitely one-sided, as my husband didn't seem too concerned about me spending that kind of money. (Go figure??)

To prepare for the tests, the plan was to go off all supplements for 2 weeks prior.  (The idea being that I wanted to see where my body was at sans supplements).  It turned out that I went off supplements for 4 weeks due to Christmas holidays and not wanting to send in tests over that time period.

Going off all supplements wasn't too bad for the first 2 weeks, but I really started to notice slight worsening of my symptoms from week 3 onwards.  I remember thinking that I wa…

Here a SNiP, There a SNiP...Everywhere a SNiP, SNiP

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After I got the genetic test results back from 23andMe, I had to be able to read the raw data, so I used Sterlings App from the MTHFR Support website ($20) to convert the raw data into something that was readable.  This generated a multi-page report on all my genetic mutations (SNPs).   The Yasko Protocol, as do many others, focuses only on the SNPs in the Methylation Pathway, as SNPs along this pathway can be bypassed using supplementation.  Dr. Amy believes in paying it forward, so she has made it possible for anyone with their genetic results to generate a Methylation Pathway Analysis for FREE!  This is a streamlined format, designed to help you choose appropriate supplements tailored to your specific SNPs.  Needless to say I took advantage of this free service and promptly printed out the 45+ page report!


Here's my genetic test results.  The green means no SNPs, the yellow means 1 of the 2 chromosomes has a mutation, and the red means both chromosomes have a mutation.